Understanding FASD
Education and awareness are the first steps toward prevention and support
What is Fetal Alcohol Spectrum Disorder (FASD)?
Fetal Alcohol Spectrum Disorder (FASD) is an umbrella term describing the range of effects that can occur in an individual who was exposed to alcohol before birth. These effects may include physical, mental, behavioral, and learning disabilities with possible lifelong implications.
FASD is the leading known cause of preventable developmental disability in Canada. It affects an estimated 4% of the population, though many cases remain undiagnosed. The spectrum nature of the disorder means that no two individuals with FASD are exactly alike—each person's challenges and strengths are unique.
Important Facts About FASD
- FASD is 100% preventable by avoiding alcohol during pregnancy
- There is no known safe amount of alcohol during pregnancy
- There is no safe time during pregnancy to drink alcohol
- All types of alcohol (beer, wine, spirits) can cause harm
- FASD is a lifelong condition, but with proper support, individuals can thrive
Causes and Prevention
How FASD Occurs
FASD occurs when a developing fetus is exposed to alcohol through the mother's bloodstream during pregnancy. Alcohol interferes with the delivery of oxygen and optimal nutrition to the developing baby, which can cause permanent damage to the brain and other organs.
The brain is particularly vulnerable to alcohol exposure throughout all stages of pregnancy. Even small amounts of alcohol can disrupt brain development, affecting areas responsible for memory, attention, emotional regulation, and decision-making.
100% Prevention
FASD is completely preventable. The most effective way to prevent FASD is to avoid alcohol entirely during pregnancy and while trying to conceive. If you are pregnant or planning to become pregnant:
Do
- Choose alcohol-free beverages
- Talk to your healthcare provider about alcohol use
- Seek support if you're struggling with alcohol use
- Educate yourself about FASD
- Support others in making healthy choices
Avoid
- All alcoholic beverages during pregnancy
- Alcohol while trying to conceive
- Judging others for past alcohol use
- Assuming "a little bit" is safe
- Drinking if there's any chance you might be pregnant
Signs and Symptoms of FASD
FASD affects each individual differently. Symptoms can range from mild to severe and may include physical, cognitive, behavioral, and social challenges.
Physical Characteristics
- Distinctive facial features (smooth philtrum, thin upper lip, small eye openings)
- Small head size
- Below-average height and weight
- Vision or hearing problems
- Heart, kidney, or bone problems
Brain and Central Nervous System Effects
- Intellectual disabilities or learning difficulties
- Poor memory and attention span
- Difficulty with executive functioning (planning, organizing)
- Poor impulse control and judgment
- Hyperactivity
- Difficulty understanding consequences
Behavioral and Social Challenges
- Difficulty in school
- Trouble getting along with others
- Poor social skills
- Difficulty adapting to change
- Mental health issues (anxiety, depression)
- Substance use problems
Diagnosis and Assessment
Early diagnosis is crucial for accessing appropriate support and interventions. In Canada, FASD diagnosis follows specific guidelines established by the Canadian FASD Diagnostic Guidelines.
The Diagnostic Process
Diagnosis typically involves a multidisciplinary team of professionals, including:
- Physicians or pediatricians
- Psychologists
- Speech-language pathologists
- Occupational therapists
- Social workers
The assessment examines multiple areas including physical features, brain function, prenatal alcohol exposure history, and adaptive functioning.
Why Diagnosis Matters
A formal diagnosis helps individuals and families:
- Understand the challenges they face
- Access appropriate services and support
- Develop effective intervention strategies
- Advocate for accommodations in school and work
- Connect with community resources
Living with FASD
While FASD is a lifelong condition, individuals can lead fulfilling lives with appropriate support, understanding, and accommodations.
Strengths and Abilities
People with FASD often have many strengths, including:
- Friendly and outgoing personalities
- Artistic and creative talents
- Strong verbal skills
- Determination and persistence
- Kindness and empathy
Effective Support Strategies
At Home
- Establish consistent routines
- Use visual aids and reminders
- Provide clear, concrete instructions
- Create a structured environment
- Celebrate successes
At School
- Individualized Education Plans (IEPs)
- Smaller class sizes or one-on-one support
- Extra time for tasks and tests
- Repetition and hands-on learning
- Positive behavioral supports
Myths vs. Facts About FASD
Dispelling common misconceptions
MYTH
"A glass of wine during pregnancy is fine."
FACT
There is no known safe amount of alcohol during pregnancy. Even small amounts can cause harm.
MYTH
"FASD only affects children."
FACT
FASD is a lifelong condition. Adults with FASD continue to need support and understanding.
MYTH
"People with FASD can't learn or succeed."
FACT
With proper support and accommodations, individuals with FASD can thrive and achieve their goals.
Learn More and Get Involved
Explore our resources or join us in raising awareness about FASD prevention and support.